Project Phase:

Redefining the Experience of Waiting: Supporting Families During Therapy Delays

When a child is forced to wait for therapy they are not only missing out on valuable opportunities for growth and development, but it also imposes a significant emotional burden on parents, caregivers, and families. But what if we could change the experience of waiting?

Improving Health Outcomes

At KidsAbility, we believe that being on a waitlist shouldn’t mean being left in the dark. We’re reimagining the whole waitlist experience with our innovative Early Engagement Project. By partnering with families, we’re transforming the way they navigate waiting and ensuring they have the support and tools they need during this time.

Problem

The demand for children’s rehabilitation services continues to grow. Unfortunately, this surge in demand has led to a substantial waiting period before children and their families can access the vital services they require. Families are left feeling stranded, and the frustration is undeniable. In fact, when we surveyed families, a whopping 100% said the wait was simply too long. But here at KidsAbility, we don’t believe in just accepting the status quo. Our Intake Coordinators, who are often the first point of contact for families, have witnessed firsthand the stress and anxiety that comes with waiting. That’s why we’ve decided to take action and redefine what it means to be on a waitlist.

Solution

Our solution is rooted in our unwavering commitment to family-centered care. We understand that emotional and educational support is crucial for families during the waiting period. So, we launched the ground-breaking Early Engagement Project, inspired by insights from our dedicated front-line staff. By collaborating closely with parents and families, we’re designing a program that offers emotional and educational support to those on the waitlist. If we’re successful, families will no longer have to feel alone or helpless during the waiting period. They’ll be provided the tools, resources, and connections they need to be a partner in their child’s treatment journey. The Early Engagement Project aims to support families from day one, allowing them to make progress and nurture their child’s development while they wait.

Update

November 2024

Progress Update 

As part of our Early Engagement work, we learned about existing programs in the province, and worked with KidsAbility families and staff to co-create a groundbreaking program we call Launch Groups. Now, when a family calls with a concern about their child, they are invited to a Launch Group, a small playgroup, as part of their intake. Here they have access to professionals, such as speech-language pathologists, occupational therapists, physiotherapists, who share strategies, guidance and the best next steps tailored to each child’s needs. By participating in Launch groups, families no longer have to feel alone or helpless while they wait. They are provided the tools, resources, and connections necessary to be an active partner in their child’s treatment journey, and they receive clear communication about what the next steps in their journey at KidsAbility will be. Launch groups aim to support families from day one, allowing them to make progress and nurture their child’s development.

Benefits

“By deepening our partnerships with families and providing tools and resources to support their child, many families and caregivers, can and will, start interventions at home while they wait.” – Gabrielle Shiry, Intake Program Manager 

Early outcomes show that 98% of caregivers who attended Launch group felt that their concerns were heard and  89% received information they can use to help their child.

Caregivers who attended Launch group were overall more satisfied with KidsAbility services. Launch Groups hold the power to reduce family stress and prevent the advancement of a child’s condition, ultimately enhancing outcomes. By implementing this program, families no longer feel like they are just waiting on a list; instead, they engage directly with professionals who provide actionable next steps to try at home. This proactive involvement helps families feel empowered and connected, as they meet other families navigating similar experiences. Families receive expert guidance straight from the professionals they’ve been eager to see, ensuring they feel supported throughout the process. This approach not only provides families with the reassurance and validation they deserve, but also allows us to prioritize those who need help most urgently. 

Our Rocket Crew

About KidsAbility

KidsAbility™ empowers children and youth with special needs to realize their full potential. 

We support over 17,000 children and youth to reach their communication, social, physical and behavioural goals each year. Using a blended model of virtual and in-person services, at KidsAbility, we help children, youth and families to achieve great things at home, at school and in their community. 

Demand for our services continues to exceed the resources available. The Rocket Discovery Centre is a symbol of our commitment to children and families that no child in our community will be left behind. Donations support life-changing therapy, innovative programs and the latest technology. Your support helps a child benefit sooner to say their first words, take their first steps, hold a pencil or spoon, or even learn how to make a new friend and participate fully in our community. Together, we can achieve this.

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